Wow, ten days went by pretty quickly. I keep telling myself that I really need to write an update and then it’s the next morning. I have certainly gotten enough comments/complaints about my current inability to post something in a timely fashion. Before I start, here is a little treat:

Rafi and her magazines

This photo makes me laugh every time I look at it. Let me answer one quick question before I get deluged with it, no, she is not on her potty.

Last I wrote was to say that the inflamed lymph nodes were due to the epstein barr virus. Since then, her viral load increased significantly and then dropped to undetectable levels. I think I may have to buy some stock in the company that makes Rituxan. She’s had two out of her four doses so far and it seems to be quite effective. It looks like Rafi has stared down one more complication and overcome with flying colors. She is impressive.

Unfortunately, Rafi has embraced the terrible twos at this point. A little late perhaps, but definitely with the intensity of a college freshman at their first fraternity party. Overall, she is a very well behaved, polite child, who is really coming out of her shell, and then the beast hits. To top that off, she wants an iPhone. “Where is my iPhone?” I tell her that she has a couple of phones including a blackberry, but that is not good enough. Ugh, it starts early.

I have to get ready for Rafi’s bath and bandage change now, so today is a very short posting. She’s doing great.