Friday morning, Day +50

Sometimes a change of scenery does a body good. In the hospital, Rafi wouldn’t walk without holding our hands. Now she is running all over the place without help. In the hospital, Rafi wouldn’t stand up on her own, she would always make us pick her up and put her down on her feet. Not anymore. Her physical therapists would be very proud of her. We’ve also had two different nurses the past two days and Rafi has really liked both of them. She will even leave Jackie and I and hang out with her new “friends”.

It’s been great to see her improve a little each day. The increased activity has taken a small toll on her skin though. She did get a blister on one of her feet, I am more than a little interested to see what it looks like now. Did it heal faster? Did it get worse? We will find out later today during bath and bandage change. Speaking of bath and bandage change, for the past two we have only given her tylenol. We think that when the strong pain medications kick in and make her feel a little loopy, she anticipates that something bad is going to happen and she acts out. So, for now, we stopped giving her the dilaudid for bath and bandage changes and she has been great.

We have to go to clinic this morning, so I am going to sign off for now.

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