Tomorrow morning, Rafi is going to have an endoscopy and some biopsies to see if graft versus host disease is the reason she is putting out so much stool. We have dreaded this procedure for so long that it’s a bit surreal that we are going to have to subject Rafi to it now. She has endured so much to this point but in then end what is just one more test. I think after it is over it will have been harder on Jackie and I than on Rafi. So far, that has rung true with every test and procedure. We’ve worried about how she would fair through some things and each and every time she has surpassed our expectations and shown that we worried about nothing. I guess that will always, and always has been, the case in being parents.

We did finally give her some food today though. Once the decision was made to undergo the endoscopy, Rafi was allowed to have her popsicle. Not that a popsicle is food, or the soft ice cream we gave her, but i think the chicken noodle soup counts. Soup is her new favorite. I never thought baked beans would play second fiddle. Then again, Shrek has now been replaced.

Other than the diarrhea issue, Rafi is doing exceptionally well. Her numbers from the blood tests are still great. She hasn’t needed a platelet or red blood cell infusion in a week or more. Her temperature has been normal for almost four days now and her blood pressure is very much under control. We spent time outside in her pink convertible again today. She just has so much fun in the car. Jackie is tiring of hearing me say. we need to get one at home. I just can’t get over how much better it is than our fancy and expensive stroller.

It is quite possible that we get to bring Rafi home with us on Monday. That will be nice.

Until tomorrow……….