Well it looks like we are going to spend a few extra days in the hospital. Rafaella had another fever today and she has to be without a fever for at least two days before we can leave. Oh well. Tomorrow Rafi will have her first set of skin biopsies since transplant. Neither Jackie and I can wait to see the results from this test. Rafi is completely off her pain medications although we can still get some relief for her if it is necessary. Her blood pressure is still running high so we took her off the steroid medication for nausea and we hope this will help.

I hope Rafi will sleep through the night, or at least a good portion of it, this evening. We’ve had five straight days of literally no sleep. She wants to sleep but can’t seem to stay asleep for long periods of time. We’ll see what happens this evening. I hope it isn’t too rough on Jackie. We have a long day tomorrow and we will both need our wits about us.

I will write a more thorough update tomorrow after the skin biopsies. Until tomorrow………..