Addition to Prior Posts

I just realized that in the last few updates while I have given some general information I have neglected to let you know how Rafi is faring. Overall, she is doing well and she is in very good spirits. The doctors are very happy with her progress so far. She has been running some high fevers, 104ish, but Tylenol tends to reduce the fevers to a more acceptable level. We also use ice packs and a cooling blanket when needed. When her fevers start to run high, she becomes a fifth appendage for Jackie or me. Her activity level has been much lower although we try to get her up and walking around as much as possible. She has the beginnings of mucositis and she complains about her mouth at times. However, she ate some clementines last night and that was a little surprising. You would think that acidic fruit and mouth wouldn’t really go together so well. Mostly, she just acts like she has the flu.

Comments are closed.